On the 3-d of December 2016, the International Day of Persons with Disabilities, PA IRODA , in partnership with the Ministry of Health and Social Protection, the US Embassy financial support and ALIGN Foundation (Australia) hold a round table on "Medical support of children and adolescents with developmental disorders. The role of the physicians and neurologists in the treatment of autism and other disorders of the nervous system development. Current approaches to diagnosis and treatment of epilepsy. " The speakers of the round table were invited experts - neurologist, Dr. Grant Purddie (Australia) and Karen Purdie the occupational therapists (Australia, Dubai).
The participants of the round table were doctors of city health centers, private medical and diagnostic centers, PMPC of Dushanbe (neurologists, pediatricians, family doctors and psychiatrists). The round table was raised urgent problem of medical treatment of children with autism and other developmental disorders, applied in Tajikistan and Australia. Issues of the diagnostic criteria for autism, early screening and diagnosis of autism, as well as the use of excessive, not proven types of medication and treatment of such syndromes as "ршпр hypertension in young children (intracranial pressure), the diagnosis does not have a place in a foreign evidence based medicine. However, the pharmacological treatment of epilepsy in children (30% of children with autism have comorbid epilepsy), it lags behind the international level.
Dr. Grant has paid attention to aspects such as the types of epilepsy and the drugs of choice. Serious problems of existing medical treatment of the speech delay and cognitive development have affected the discussion of such a phenomenon as "medicine for the speech", "to improve the functioning of the brain", which is widely used by our doctors in the treatment of children with autism, cerebral palsy and intellectual disabilities. Issues of cooperation of physicians with early intervention specialists, in order to improve the process of early-onset of early intervention programs. All participants received a booklet "Autism modern diagnostics and rehabilitation" at the end of the round table. The round table was attended by 44 people. Dr. K Grant Purdie and Karen also held consultations of children with epilepsy and otherneurological disorders. Thank you to the US Embassy and ALIGH Fund for supporting our initiative
Lots to learn in the kitchen...As IRODA has grown as an organization over the last 5 years the children that they been working with have also grown up! The committed IRODA staff are continually looking for ways in which to encourage the children and young people that they work with to gain new skills. A recent addition to the space in which IRODA works with young people with autism has been a kitchen. This is providing great opportunities for those who attend IRODA’s programs to develop some basic cooking skills. With the support of IRODA staff they are learning the steps that are involved in preparing food, as well as learning to follow instructions and work together. As they do this there is the added motivation and reward of being able to eat what they’ve cooked!
Many of the young people IRODA is working with have spent a significant part of their childhood without opportunities to attend school or be involved in their local communities. IRODA is committed to seeing these young people develop new skills and have the chance to participate alongside others in family and community life. The new kitchen at IRODA is just one way in which young people can gain skills for life within a supportive and understanding environment. Your on-going support of IRODA’s work is allowing us to continue to create new opportunities and experiences for children and young people with autism in Tajikistan. If you want to support our pre- vocational programe , you could order our cookies whenever you need! The contact phones are listed in the contact page! Thank you!
IRODA was started by a group of parents who understand the challenges that can arise when parenting a child with autism. Whenever possible IRODA looks for opportunities to support parents in this role. Recently we were thankful to have a visiting medical professional from the UK who is also a parent of a child with autism himself. He was able to meet with parents connected with IRODA and share from his own personal experience as well as his professional background.
Time spent discussing stress-management strategies and suggesting ways parents could help themselves and help each other was of great value. IRODA hopes to continue to facilitate opportunities for parents to get the support they need while also reaching out to one another. We are grateful for your partnership with IRODA that enables us to continue to find new ways to help children with autism and their parents in Tajikistan.
IRODA express their gratitide to Dr Karim Rajput from the Perceptive Health, UK for his dedicated time at IRODA.
In July 2012, Karen Purdie represented IRODA at the first ever TEDx event in Dushanbe, Tajikistan. Below is the transcript of her talk, which raised awareness for children with autism in Tajikistan.
"Autism initiative in Tajikistan"
Published on the World Health Organization Country Page for Tajikistan
"The first official autism trainings were held in Tajikistan in November 2014. As a result, significant progress has been made towards developing effective systems the will ensure children with autism receive an appropriate diagnosis and access to early intervention....
Until recently, autism has not be recognized or well understood in Tajikistan, which resulted in children being misdiagnosed and without access to appropriate services. Prior to the training, professionals were unable to officially diagnose autism.
Key outcomes of the training and the autism initiative
Read the full article here.
IRODA Was mentioned in Geolog Following Solmaz Mohadjer and Josy Strunden's Trip through the Pamir to Raise autism awareness
"Imaggeo on Mondays: Stone Flower"
By Laura Roberts-Artal
"In a true feat of endurance, self-discovery and resilience, Solmaz Mohadjer and Josy Strunden, geology students at the University of Tübingen (Germany), cycled 800 km in the Pamir Mountains as part of a trip to raise awareness about autism in Tajikistan. 'We cycled through one of the most tectonically active regions on the planet, passing by mountain communities that welcomed us warmly as well as ancient fortresses, hermit caves, Buddhist stupas, hot springs, and geologic wonders such as the Stone Flower' describes Solmaz..."
Read the full article here.