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When everyone home....or when inclusion starts from families.......

4/19/2018

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The informational campaign “When everyone home”  were conducted  to attract public attention and the media to autism  and disability in Tajikistan and reduce stigma and misunderstanding towards to children and adults with disabilities and their family members. This campaign celebrated role of the  families, for the better child development in early ears and through the lifelong period.
     This initiative was supported by international and local partners on development. IRODA is thankful to BICE on supporting the discussian club.
The palette of various shades of emotion painted a meeting of parents of children with developmental disorders, whose children live in families. Parents shared the most intimate - the pain of experiences, the happiness of achievements, the warmth of the relationship and immense love for their children, grandchildren, brothers or sisters with developmental features. The prevailing stereotype of pity and condescension, the need for alms and support for people with developmental disabilities and their families is being destroyed every day, that pleases and inspires. However, a new side stereotype is often imposed on omnipotence, immense optimism and unfading readiness for the eternal struggle of people with developmental disabilities or their parents. There are no poles in the gallery of life stories, all shades of joy or gravity of being, thoughts, feelings and relationships of this life smoothly pass from one color to another. Our children and we are just living, ordinary people who cry and laugh, sad and rejoice, just like everyone else, like all people .... The imposed stereotypes of "victims" or "heroes" prevent us and our children from being themselves ........
There are people who you see, and you're happy, there are people you hear, and you're happy, there are people you just think about ...... and you're happy ..... This campaigns  helped us  to understand this one more time!

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AUTISM-DAR YAK ZAMIN: yOU ARE NOT ALONE .....

4/12/2018

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     Thanks everyone who became  a part of this world movement and support us in our campaign
                                              “DAR YAK ZAMIN- You will never walk alone”
which was held on
April 7, from 13.00 to 15.00,
At Dushanbe Molle "Ashan City".The Public Association of Parents of Children with Autsim, "IRODA", thanking  everyone on cooperation and support.  We drew  attention to April 2, World Autism Awareness Day, as established by the UN General Assembly on December 18, 2007 (Resolution No. A / RES / 62/139) 2008, at the initiative of the State of Qatar.
    The resolution of the General Assembly focuses primarily on the problem of autism in children and adolescents and expresses concern about the high birth rate of children with autism, the importance of early diagnosis and appropriate education and professional development.
     This informational campaign was conducted  to attract public attention and the media to autism in Tajikistan and reduce stigma and misunderstanding towards to children and adults with autism.
      Sincere gratitude to our partners: FLEX Alumni Program ( American Council), PA “Peshraft”, Tajik Slavonic University in RT, Y PEER, Tajik Community of Toronto, KIMEP University of Kazakhstan, “Dushanbe Molle”,  “Dunei Nav” Company, “Ustodesigh” Company,  "Coka cola" Company,  PA “Shodi Allegria”, "Alladdin" center, "Dobrota" group.
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2 APRIL - autism awareness day 2018

4/2/2018

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Tajikistan - Bangladesh International consultant on early intervention and infant mental health came to Dushanbe. IRODA Practicing parent mediated early intervention program .

9/6/2017

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Spring - Summer of 2017 were full of various events, which are so important for our children, families, professional community and the Tajik society as a whole. Within the framework of the partnership project "Promoting Early Intervention Programs through the Involvement of Parents in the Healthcare System of the Republic of Tajiksitan", one of the leading experts of early intervention and mental health of Bangladesh and Australia, Dr. Nusrat Ahmed (Director of HOPE Center, Dhaka), visited Tajikistan. Dr. Nusrat conducted a series of sessions on the role of the medical worker in the early screening of developmental disability, as well as in early intervention and current approaches to "therapy" for children with neurodevelopmental disorders. Dr. Nusrat held sessions for doctors, parents and specialists of the city of Dushanbe. I monitored the programs of the Center for Support and Development of Children and Adolescents with Autism and Mental Development.  IRODA started working towards incorporating principles from the Early Start Denver Model.
 Initiative support - OSI FS, UK and the ALIGN Foundation, Australia.
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1 -st of September! Inclusion became a reality.....

9/5/2017

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​Congratulations to everyone on the start of the new school year!
 
We believe that education should be accessible to all, regardless of any physical, mental or sensory differences. Therefore, we are glad that with your help, today there are children with autism are going to schools and kindergartens!
 
September 1 is a day of knowledge..... For parents who have been preparing for this day for many years there are tears of joy. Five years ago the inclusion of children with autism in mainstream schools was just a dream.  Now as a result of the perseverance and incredible effort of parents and parent-led organizations in promoting inclusion it is now a reality. Mainstream schools (No. 54, No. 70, No. 29, No. 28 and No. 72) in the city of Dushanbe are examples of this dream come true.
 
Today our children, who are graduates of early intervention programs and adaptive classes at IRODA, are attending school.  11 children with autism commenced first grade. 12 students progressed to higher grades in mainstream schools № 50, № 101, №72, № 28, № 70 and № 29. 30 children who have autism and additional challenges are supported in special classes at Dushanbe schools № 72 and № 54. IRODA is extremely thankful to all involved in making this dream a reality.  Our thanks goes to the school directors, teachers, specialists, parents, employees of public organizations and tutors for their solidarity and persistence over the last 5 years.
 
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WORLD AUTISM AWARENESS DAY - 2017

9/5/2017

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 Raising Awareness
 
As World Autism Awareness day was acknowledged on April 2nd the IRODA staff in Tajikistan were once again making a concerted effort to increase understanding and acceptance of people with autism in their country.   Since the organization’s beginning IRODA has been deliberate about both raising awareness of autism amongst the general public, and advocating for change in systems and policies.  Two major events this month have highlighted how effectively IRODA is doing this.
 
With the support of the US Embassy in Dushanbe and Ustodesign, IRODA was able to work with a popular Tajik singer “Bakha 84” who released a song and video clip promoting the acceptance of children with different needs, and advocating for their rights to be part of family and community life in Tajikistan.  In a country where institutionalization of children with special needs is still common the message of Bakha 84’s new release is an important one. 
 
 
On the 5th of April at the United Nations Information and Resource Centre in Dushanbe important discussions occurred and a resolution was drafted for the recognition of autism as a diagnosis in Tajikistan.  To date the government register does not include autism, and children are unable to receive an official diagnosis.  This creates confusion for families and delays in children receiving early intervention and appropriate supports.    This high level advocacy that IRODA is involved in is creating changes to systems in order to create everyday opportunities for children with autism and their families.
His Excellency British Ambassador Hugh Philpott in Tajikistan supportedWorld Autism Awareness Day organized by "The Initiative of Tajikistan’s Parents of Children with Autism IRODA" together with five UN agencies to attract wide audience’s attention towards autism spectrum disorders.
 
 

YOU TUBE
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​As IRODA continues exciting initiatives like these attitudes of people like neighbors, classmates and shop assistants will change, systems and policies will recognize the necessary supports, and as a result children with autism and their families will experience acceptance, understanding and new opportunities. 
 
Thank you for being part of making these changes happen!
 
​Tajik hip hop artist Baha84 has supported World Autism Awareness Day with this song.The United Nations General Assembly has unanimously declared 2 April as World Autism Awareness Day (A/RES/62/139) to highlight the need to help improve the quality of life of those with autism so they can lead full and meaningful lives as an integral part of society.
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IRODA staff - Learning international experience May-June 2017

9/5/2017

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​In May 2017, employees of IRODA expanded their professional skills by studying international approaches in the USA, Georgia and France. Staff participated in various international programs, training and conferences including:
  • the US Embassy program in the Republic of Tajikistan "The Open World" - an initiative in support of mental health, Ohio, USA.
  • ECI-CARES Early Intervention Program, Oregon, USA.
  • Congress in Support of Childhood, BISE, France,
  • and the Annual Networking Workshop "Early Intervention and Inclusive Education Initiative", Georgia.
Following these training opportunities a review of IRODA’s work was conducted and the organization began to implement approaches studied, adapting them to the national context, whilst keeping the underlying principles
 
ECI CARES Early Childhood Intervention Program, Oregon
From this visit experience and knowledge was gained in parent mediated intervention, family centered models, active role of parents in communication and interaction, and the importance of early intervention and working in the home environment.
 
Open World Program "Mental Health Initiative", Ohio, USA.
Knowledge was gained about services for people with mental health issues, programs promoting professional development, independent living, and self-determination.
 
Network Initiative of Early Intervention and Inclusive Education, Tbilisi, Georgia, May - June 2017.
Introduction to the policy, culture and practice of early education and early intervention of Georgia, Ukraine, the United States and Great Britain.
 
Congress of BISE "Education and Childhood", France
Experience of special education and inclusive schools settings. Network meeting of BICE partners from Russia, Georgia, Brazil, Argentina, Kazakhstan, Tajikistan, France and African countries
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Expending the support, sharing the ideas

7/31/2017

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​2 day ECI Round table  for medical professionals and ECI practitioners was conducted, with participation of MOH,  CHD, OSF representatives, regional doctors  and  NGO’s and  representatives from Parents Organizations. 2 international consultants presented on early screening and early intervention practice, infant’s mental health and ECI principles. MOH representative – Rahmatullaev S.R., heard of Mother-child health department emphasised on ECI importance, political window (based on National Rehabilitation Strategy for People with disabilities) and MOH participation on sighing the ECI conception and developing the ES and ECI manuals for medical professionals. National speakers were presentation on current  ECI models and programs in Sugd area, overviewed the ECI development in Tajikistan , spoke about attachment and role of doctors on  referrals to ECI  services and ASD early identification.
50 participants were attending the Round table.(CHC doctors and medical nurses, Family medicine centre staff,  Postgraduate Medical University staff, PMPC staff, Centre of paediatrics , NGO partners)
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new year 2017- meet together

12/30/2016

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 IRODA express their heart gratidude to 55 GROUP and  Muzaffar Foudation for giving our kids  amasing  opportunity to celerate New year with their families in Sport Bar Istiklol. The celebration was supported by Nasiba Karimova and her volunteras from Allegria and initiated by the IRODA Board President- Gulshan Gufronova. Thanks to our special guest - famouse fashion  designer-  Maknuna!  Fabulos music, games and activities joined all parents together again! 
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NOTES of JOY.......

12/30/2016

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 On the 18 December 2016,  the cozy Sheraton hosted a charity concert "Notes of joy."
Event organizer: NGO "Shodi" brand Alegria
The musical program is presented with the support of initiatives of the Aga Khan in the field of musical creativity.
Sponsors of the event: Hotel Sheraton, Doshan Hostel, Cafe Doshan and company Dinar service
Partners of the event: ANCO company, advertising agency 4you, PA "Dust will ba" 
Guests will enjoy live music genre Shashmaqom, Badakhshan songs and modern music by talented musicians, Khujand, Isfara, Dushanbe and Khorog.
​usicians - Sodirhon Ubaydullaev, Sardor Soliyev, Hamza Hakimzoda, Hushbaht Niyozov, Shakhboz Karimov Gulomsho Safarov Ubaidulloev Saidullo, Yormatov Farhod were in Central Asia, Europe, the United States and are members of the international program «Play Together».

With Christmas songs performed beautiful Lola Sharipova with a wonderful voice.
​
NOTES JOY ...........
  
Media partners: TRK "Watan», IDEAS magazine, website and afisha-news.tj tajikmama, tonight.tj project and Vecherka newspaper.
* Proceeds from ticket sales amounted 4050som and was transferred to the center of support and development of children with ASD. 
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